Multifocal Motor Neuropathy (MMN) Management
A diagnosis of MMN can bring up many emotions, but there’s relief in knowing it’s treatable. The sooner you and your doctor discuss treatment options and get an MMN management plan in place, the better.
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MMN Management
Forming your MMN management plan
Recently diagnosed with
MMN
Multifocal Motor Neuropathy (MMN)
(how to say it: muhl-tee-FOE-kuhl MOE-tur nur-AH-puh-thee)
Definition:
A rare medical disorder in which nerves that control muscles are attacked by the body's immune system.
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? Now’s the time to partner with your doctors (including a neurologist, most likely) and figure out what comes next. Part of that partnership includes creating an MMN management plan that’s specific to you.
Your MMN management plan may include medication, additional specialists, or lifestyle changes:
Physical therapy & occupational therapy
Stretching exercises, strengthening exercises, massage, and learning ways to work with reduced strength in affected areas of the body.
Regular exercise & diet changes
You also may find it helpful to keep up a low-impact exercise routine, as you are able. This may include stretching your muscles on a regular basis. Work with your doctor to build an exercise regimen that feels effective to you.
Medication
A standard treatment for MMN is
intravenous
Intravenous
(how to say it: in-truh-VEE-nuhs)
Definition:
Administered into a vein.
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immunoglobulin
Immunoglobulin
(how to say it: uh-myoo-now-GLAA-byuh-luhn)
Definition:
Proteins present in the serum and cells of the immune system that function as antibodies.
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(IVIg) therapy. IVIg therapy temporarily replaces
antibodies
Antibodies
(how to say it: AN-tuh-bah-deez)
Definition:
Antibodies are proteins made by the immune system to fight infections. Sometimes, increased levels of GM1 antibodies show up in blood test results for people with MMN.
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in your system. It’s delivered into your vein, usually in your arm, either at an infusion center or with an at-home infusion nurse. It’s important to discuss with your doctor whether this type of medicine may be a good option for you.
You and your doctor can develop a management plan that works for you. Be sure to be open about any questions or concerns you might have.
For example, you may want to ask:
- What could the benefits of my management plan be?
- What risks are involved?
- Will my MMN management plan change over time?
- Where can I go for physical, occupational, or IVIg therapy?
- How will this plan fit into my lifestyle?
- How can managing MMN help with my health goals?
Talk to your doctor about your symptoms so adjustments can be made based on your needs.
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Living with MMN
Jen: After what felt like a revolving door of specialists and doctors, I finally found the right one to help me treat my MMN.
I have a great relationship with my neurologist. He listens to me. He doesn't just treat me. I see him every three months for a checkup, and I love that I can email him something that may have happened, and he's quick to respond and suggest things to help me.
We work together closely to make sure that my symptoms and side effects are managed and to make sure I have the right treatment dose and that it works with my schedule and lifestyle.
I hired a personal trainer that worked with neuropathy patients, and she was able to teach me tricks on how to engage muscles that I needed to engage in my legs to keep me strong.
It's very important to me to have a team that's patient and understands what I'm going through. They let me cry, and then they pick me back up. They listen carefully. They're empathetic. I'm very lucky to have such an amazing team to support me.
KNOW
about a treatment option for MMN
Learn about one treatment option available for people living with MMN.
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