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Diagnosing CIDP

If you or a loved one suspect chronic inflammatory demyelinating polyneuropathy (CIDP), it's important to talk to your doctor right away. Understanding the importance of managing your disease may help you prepare for the process.

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Differentiating CIDP from other conditions

The symptoms of can appear as other conditions, such as or . Understanding the symptoms of CIDP and how they differ from other conditions may help you and your doctor focus on CIDP.

3 tools for understanding symptoms and learning how to live with CIDP

DOCTOR VISIT CHECKLIST

Discussing your symptoms with a doctor can help you understand what might be causing them. We created this checklist to help you make the most of your doctor visits.

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Symptom
tracker

Use this symptom tracker to take note of your symptoms and how you feel over time. It may help you have more informed discussions with your doctor.

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CIDP
BROCHURE

Learn about the lives of other people living with CIDP—including their joys, their frustrations, and their tips for daily life.

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CIDP and misdiagnosis

CIDP can be difficult to diagnose. This chart clearly shows the symptoms of the three conditions that have similar symptoms to CIDP. If you think you may be living with CIDP, talk to your doctor about the diagnostic process.

CIDP vs other conditions that can look like CIDP

Condition
Key signs and symptoms
Body distribution
Disease course
Condition
Key signs & symptoms
Body distribution & disease course
  • Tingling, weakness, and loss of feeling in arms and legs
  • Loss of reflexes
  • Loss of balance and difficulty walking
Symmetric
SymmetricMODERATELY
progresses, or
MAY RELAPSE
  • Pins and needle sensations in the hands and feet
  • Numbness
  • Weakness and muscle cramps in the arms and legs (sometimes only legs)
  • Decreased tendon reflexes
Symmetric
SymmetricRAPIDLY
progresses
  • Muscle weakness in hands or feet
  • Muscle cramping, twitching, or spasms
  • Symptoms usually start in one hand or foot
  • No issues like numbness, tingling, or pain
  • Blood tests report anti-GM1 antibodies
Asymmetric
AsymmetricSLOWLY
progresses
  • Weakness in hands, legs, feet, or ankles
  • Muscle cramps and/or twitches
  • Slurred speech or trouble swallowing
  • Tripping, falling, difficulty walking
  • Changes in behavior
Asymmetric
AsymmetricQUICKLY
progresses
  • Numbness or tingling in fingers
  • Sometimes pain in hand and wrist
  • Fingers feel useless and swollen
Asymmetric
AsymmetricModerately
progresses
swipe for other conditions

CAREGIVER TIP

Your loved one relies on you not only for physical support, but for emotional support as well. Speaking up when they aren't able to is another useful way to help your loved one. Keep track of any symptoms you may see, as this may aid their doctor in the diagnostic process.

Tests for diagnosing CIDP

Medical exam

A doctor will conduct a detailed medical history to determine your symptoms, when they started, and your current physical abilities.

Electromyography

The electrical activity of a muscle is recorded during a test called an . This helps determine if muscle weakness is being caused by the muscle itself or by nerves that control the muscle.

Nerve conduction study

A nerve conduction study can test the impulses from the brain to specific nerves, helping pinpoint where the nerve might be damaged.

Differential diagnosis

Your doctor should consider all the possible conditions that could be causing your symptoms and rule them out before giving an official diagnosis. Diseases such as MMN and ALS can appear similar to CIDP. See the chart above to understand the similarities and differences between the conditions.

In CIDP, sensory impairment is more common in the arms than in the legs

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Starting the diagnostic journey

Because CIDP is rare, not all doctors are familiar with the condition. So, it helps to know about the diagnostic process and how to talk about CIDP with your doctors. Specialized doctors called are usually needed to make a CIDP diagnosis.

If you think you may be living with CIDP, be sure to talk to your doctor.

KNOW

WHERE TO FIND A Neurologist

Finding a neurologist is the first step to a correct diagnosis and an appropriate management plan. It's important to advocate for yourself until you find the neurologist who is right for you.

FIND A Neurologist

GET SUPPORT FOR YOUR CIDP

Get the latest information on CIDP, plus a free CIDP starter kit filled with information, resources, and tools to help you along your CIDP journey.

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